Showing posts with label sarcoidosis. Show all posts
Showing posts with label sarcoidosis. Show all posts

Wednesday 5 November 2008

A little rant ...

I've been blogging for 8 months now and from the start I wanted this to be a happy place to visit and so I kept it bright and breezy with lots of pretty pictures of my two passions of beadwork and flowers. But like my picture in the previous post, this is just an image that doesn't tell the whole truth. This picture was used in my profile in the latest issue of Bead magazine in which I hinted at some of the darkness, and yes it is a picture of me beading in our garden. I heard from one or two people that they liked that image, that they wanted to be me, wearing that dress, beading in that garden. I don't dispute that I am a very lucky person but like most photographs, that picture is posed. Perhaps the way I have portrayed myself is the reason I receive quite a few emails almost demanding to know how to do something without even a please or thank you, or why a few people think it is OK to 'buy' something from me and then not send me the money, or to send me aggressive or abusive messages, or to copy my work without acknowledging me? To be fair, I also receive lots of wonderful messages too and I take the good with the bad and respond to every one in the same kind and friendly way that I would like to be treated.



I hadn't really meant to say all this, but it ties in nicely with the main subject of today's post. My lovely husband Simon was made redundant last month and has so far not found another job. On top of that, on Monday he was diagnosed with sarcoidosis which is an auto-immune disease in which the body attacks itself - in Simon's case it is in his lungs and already his lung capacity is down to 60% of what it should be. It was a scary thing to hear and we knew nothing about this condition, but I have since heard from lots of my beady friends who have or know someone with this problem and with the right treatment the outlook is good. We will get through this together. I am very thankful for the new friends I have found through my beadwork and for those who treat me as an equal human being and see the person behind the image. To the few who seem to either want to be me or have a piece of what they think I have, I would say "Welcome, but not everything in my garden is rosy!"



There, that's got that off my chest - normal beady service will be resumed next week!